On February we are finally going to have my son's Mediation Hearing with his school district. My advocate has put together a reasonable summary and demands and I'm hoping that the district will give us what we ask for, its scheduled from 9:30-4:30 so I am assuming that it's like a bankruptcy court where you show up and wait to be called...but then again does it really take 7 hours?
Also his Tri-Annual IEP is coming up on January 30 and his IEP (Individualize Educational Program) is going to be revised to his needs, his old IEP goals seem to not make sense so I revised it to his specific needs and realistic goals. I looked up on how to write IEP's on the internet and found some very good advice and strategies. I believe every parent should really look at their child's IEP and determine the reality of the goals and what is expected from their children.
So till then we will await our outcome in February and hope for the best. Wish us luck.
Monday, January 14, 2013
Wednesday, January 2, 2013
Update to his Education
Spoke with David's Advocate and we are in the process of filing the petition for the hearing mediation regarding MVUSD not giving him his one-on-one aide that I requested and also to make some new demands due to the insuffient teacher (Mr. Hansen) at Sunnymead Middle. Regardless of the re-training and support given to this teacher and staff it does no justice to keep my son there for the next 3 years till he gets into High School. David would basically enter High School lost and behind if he stays in Sunnymead Middle, so I have requested his transfer out to anothe Middle school with a better teacher and staff. My request are simple and reasonable, the teacher doesn't do the PEC system (see You Tube under PEC System phase 1) which is on his IEP (Individualize Education Program) becasue he is just plain lazy.
Five months of this un-necessary battle, lack of sleep and stress will finally come to an end soon. Good news David is able to adapt to a communication device to use a soft ware applicaiton to communicate so I requested that he get an AT Evaluation from the Psychologist.
I walked in 3 weeks ago to pick up my son for a doctors appointment at 2:45, while entering the room I saw my son sitting at a desk by himself touching a texture puzzle while an aide sat on top of the table watching over him. The other two aides were talking to the Substitute because Mr. Hansen had left. Kids just kind of scattered everywhere, one by the door laying on the floor playing with a guitar toy, one sitting on the floor (which she is not suppose to be, she has CP) which she should be on a bean bag personally requested by her parents. There was no curicculum being done just socailizing, so as I got my son ready to leave Mr. Hansen walks in and is suprised to see me. "Oh I was expecting you this morning?" he said, of course I didn't make it in this morning, they want me to check in before I show up to his class. Before I just walked in with out notice and after signing in at the front office; now since I filed the complaint I am asked to call ahead of time and was asked to wait till January to observe the class because they are still getting things together for the transition. From what I saw 3 weeks ago I see no progress, so when school is back in session January 14, 2013 we are suppose to have another "special" open house for us parents to observe the class room as a new and trained place for our kids.....blah blah blah....I am so done with these people they have no clue as to what makes a great program for these kids because if they did it wouldn't involve Mr. Hansen.
I should be hearing something about our hearing date soon and hopefully by February he will be at a better school where they value the education for special needs. I tried to get other parents involved and to my surprise only one is making noise just like me, the other parents I feel have fallen for the Districts deciet and lies of how this new training will be better, its sad but alot of parents prefer not to fight it's just too dang stressful and we already have to deal with our disbaled kids. One thing is for sure Jeff Frazier (Special Education Assistant Director) needs to go, that guy can care less of what the parents want, he has such a one track mind and never supportive of any issues that involve our kids. I mean how hard can it be to improvise, adapt and LISTEN to our concerns, not just listen to us complaining but take into consideration the child first.
Five months of this un-necessary battle, lack of sleep and stress will finally come to an end soon. Good news David is able to adapt to a communication device to use a soft ware applicaiton to communicate so I requested that he get an AT Evaluation from the Psychologist.
I walked in 3 weeks ago to pick up my son for a doctors appointment at 2:45, while entering the room I saw my son sitting at a desk by himself touching a texture puzzle while an aide sat on top of the table watching over him. The other two aides were talking to the Substitute because Mr. Hansen had left. Kids just kind of scattered everywhere, one by the door laying on the floor playing with a guitar toy, one sitting on the floor (which she is not suppose to be, she has CP) which she should be on a bean bag personally requested by her parents. There was no curicculum being done just socailizing, so as I got my son ready to leave Mr. Hansen walks in and is suprised to see me. "Oh I was expecting you this morning?" he said, of course I didn't make it in this morning, they want me to check in before I show up to his class. Before I just walked in with out notice and after signing in at the front office; now since I filed the complaint I am asked to call ahead of time and was asked to wait till January to observe the class because they are still getting things together for the transition. From what I saw 3 weeks ago I see no progress, so when school is back in session January 14, 2013 we are suppose to have another "special" open house for us parents to observe the class room as a new and trained place for our kids.....blah blah blah....I am so done with these people they have no clue as to what makes a great program for these kids because if they did it wouldn't involve Mr. Hansen.
I should be hearing something about our hearing date soon and hopefully by February he will be at a better school where they value the education for special needs. I tried to get other parents involved and to my surprise only one is making noise just like me, the other parents I feel have fallen for the Districts deciet and lies of how this new training will be better, its sad but alot of parents prefer not to fight it's just too dang stressful and we already have to deal with our disbaled kids. One thing is for sure Jeff Frazier (Special Education Assistant Director) needs to go, that guy can care less of what the parents want, he has such a one track mind and never supportive of any issues that involve our kids. I mean how hard can it be to improvise, adapt and LISTEN to our concerns, not just listen to us complaining but take into consideration the child first.
My son is "Unique"
After learning about my son's chromosome disorder and searching the web for some insight I came across the Unique website and after registering with them I was also linked to Facebook with other parents who have children with rare chromosome disorders. So I posted my introduction and it was amazing how many other parents understand you and from all around the world. This open ups a whole new world to me and my son, new information and research needs to be done so he can become the best at what is expected of him. So I offer this advice...Educate yourself people, they are so many types of disabilities out there that we tend to ignore the most rare becasue they are not in the spot light like Down Syndrome or Autistic, but never the less they are all special. Having a child with a rare chromosome disorder can be scary but parents don't give up, advocate for your child in every which way. I asked lots of questions and did lots of research to get where I am today with David and my challenge has just turned a different corner. Happy New Year to all of you and may the best of wishes come true for 2013.
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