Rare Chromosome Disorder: Round Two v. Council

Unique

After David being diagnosed with a rare chromosome "genetic" disorder I was referred to a web site called rarechromo.org and I found there facebook page for parents who have children with a rare chromosome disorder. There is approximately 3 families that are registered in the United States and most of the families are registered in the UK. My son was tested by his Metabolic and Genetic doctor for Fragile X Syndrome and even though he had the defect of the "X" chromosome he did not have Fragile X. It's not until 3 years later that he got tested for the deletion of his genetic chromosome and therefore diagnosing him properly. I recommend that ALL parents have their children tested by a genetic doctor, you just never know what you'll find out.

Monday, November 12, 2012

Round Two v. Council

Tomorrow is another Board meeting at Moreno Valley and I'm attending to hear what the board has come up with regarding my complaint on Mr. Hansen. As far as I know there is an investigation going on but what I don't understand is how a teacher can be investigated and re-trained for the second time on the same issue. How do you take accountability to his incompetence of teaching while you are still training him? Either Mr. Hansen is unaware of what he just told me or the district has not really toke my complaint into consideration.
Also, I'm going to this meeting to approach Mrs. Vackar on her ignorance regarding my right to speak freely in a public meeting and how telling me not to mention the teacher's name is a violation of that right. A group of supporters are going to attend this meeting as well to acknowledge Mrs. Vacker and remind her of this great Constitutional right we have in this country. I just want what is right for my son, a better education, is that so much to ask for? why does the district make it so hard and put so much more on my plate....it's not like I don't have alot on my plate already...it's not easy dealing with a child of special needs and yet they find ways to make your life more difficult because they feel that our children are not important in this community. It's ignorance like that which causes movement and people to rise against; it's ignorance like that which makes a community stronger.
So next time you attend one of these board meetings, ask yourself this question: Am I important and is my issue important, that I may get the respect and honesty that I give in return? and the answer is YES!!! everyone has a right to speak and be heard regardless of race, gender or disability and for someone so ignorant not to understand this should not be in our city council board.
So I ask everyone who reads this to call Moreno Valley Unified School District at 951-571-7500 or visit the MVUSD.net website and email the district and complain to them and ask them "why is the council violating our citizens right to speak and why is the district funds for special education not being used in special education?
If everyone got involved and let the district know that the community is watching them, we as parents will be taken seriously and action will follow with positive results.

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Technology

http://www.ablenetinc.com

One thing to consider is technology for your child, for instance my son has an I-Pad that he uses at school for learning his name recognition, tracing letters and numbers and also for communicating. He understands the concept of sliding and pushing buttons in order to make the use of the I-Pad, he does this at home with our phones as well. So, if your child is tech-savvy then why not consider technology as a learning technique. See the above website for more information on Assistive Technology Products.

IEP's

http://specialed.about.com/cs/iep/a/ieparticle.htm and

autismvancouver.blogspot.com/2012/04/ieps-and-autism-spectrum-disorder.html

As a parent with a child who has a disability, it can be overwhelming just to find him the proper placement for their education. An Individualized Education Plan (IEP) is important to have, but the parent needs to be realistic about what their child can and cannot do. Take into consideration the physical, mental and behavior issues and make a list of what is the most important concept for your child to succeed. For example, my child is non-verbal and not toilet trained; therefore, I chose for his IEP to establish goals for communication and toilet training. I know that my child is unable to comprehend Math, so he will benefit with more Daily Living Skills to make him more independent at home and in public. So, parents please re-evaluate your IEP and child every year, so that making the proper goals and placement will benefit everyone, especially your child. See the above website for more information.

Rare Chromosome Disorder