Unique

After David being diagnosed with a rare chromosome "genetic" disorder I was referred to a web site called rarechromo.org and I found there facebook page for parents who have children with a rare chromosome disorder. There is approximately 3 families that are registered in the United States and most of the families are registered in the UK. My son was tested by his Metabolic and Genetic doctor for Fragile X Syndrome and even though he had the defect of the "X" chromosome he did not have Fragile X. It's not until 3 years later that he got tested for the deletion of his genetic chromosome and therefore diagnosing him properly. I recommend that ALL parents have their children tested by a genetic doctor, you just never know what you'll find out.

Wednesday, November 14, 2012

Follow up on meeting

The board meeting went well, Mrs. Vacker actually apologized before hand and said it was an error in her part, a couple of her board members confronted her on that mistake and she toke responsibility...good for her. I was able to speak again and I mentioned that while I observed a Riverside District School I saw how much technology that class room had for their students, for example: ipads, computer apps., remote control toys with push button control. I mean they had some good stuff and all the kids were capable of using them, thanks to the wonderful aides in that classroom. I asked the board to please look into having technology be put into our district especially in Mr. Hansen's class because our kids would be able to communicate with a tap or even a simple eye brow movement and to have the funds for special education be invested in technology. Also I stated that Mr. Hansen's class room does not do community based intervention, no mall trips or any trips what's so ever. These kids never go out, so why can we look into it and have this intervention be put in place at Sunnymead Middle, since all other schools seem to do it  why not ours?
Cathy, another parent who has a daughter in Mr. Hansen's class got up to speak and she mentioned her concerns regarding her daughter. Her daughter has had a fall accident under Mr. Hansen's supervision and Cathy has asked the school to put in carpet in the classroom because her daughter has CP and she and other students need a soft surface to move around in. Also while she had an IEP meeting she asked to see the class after and when she walked in she saw her daughter laying on the floor, not the carpet, but the floor.
How can they just leave her there and not put her in a bean bag or even her gait trainer? She begged the Board to please go see the classroom and see for yourself, she began to cry and who can blame her, it hurts knowing your child is being mistreated. Mr. Rios assured her that the board is taking this seriously and will look into it.
Thank goodness!!! another parent was brave enough to speak out and now their are two complaints on this teacher. And as for the other group who was their to support me on my issue regarding my first amendment rights, they were their and they got a chance to speak out on the Budget Committee Advisory meetings to keep them public and for the board not to try to make the meetings  a Superintendent Budget Meeting, because of the Brown Act the public has every right to see and hear where our budget is going. So the meeting went well and the outcome was good. In update on Mr. Hansen' investigation, I believe its finalized and Kathy Yugo and Mrs. Woosley are still there training the aides and Mr. Hansen. So I asked Pam Binder to look into the matter about if I can return to the classroom to observe my son. Thanks to all who were there to support us and will keep you posted on the outcome.

Monday, November 12, 2012

Round Two v. Council

Tomorrow is another Board meeting at Moreno Valley and I'm attending to hear what the board has come up with regarding my complaint on Mr. Hansen. As far as I know there is an investigation going on but what I don't understand is how a teacher can be investigated and re-trained for the second time on the same issue. How do you take accountability to his incompetence of teaching while you are still training him? Either Mr. Hansen is unaware of what he just told me or the district has not really toke my complaint into consideration.
Also, I'm going to this meeting to approach Mrs. Vackar on her ignorance regarding my right to speak freely in a public meeting and how telling me not to mention the teacher's name is a violation of that right. A group of supporters are going to attend this meeting as well to acknowledge Mrs. Vacker and remind her of this great Constitutional right we have in this country. I just want what is right for my son, a better education, is that so much to ask for? why does the district make it so hard and put so much more on my plate....it's not like I don't have alot on my plate already...it's not easy dealing with a child of special needs and yet they find ways to make your life more difficult because they feel that our children are not important in this community. It's ignorance like that which causes movement and people to rise against; it's ignorance like that which makes a community stronger.
So next time you attend one of these board meetings, ask yourself this question: Am I important and is my issue important, that I may get the respect and honesty that I give in return? and the answer is YES!!! everyone has a right to speak and be heard regardless of race, gender or disability and for someone so ignorant not to understand this should not be in our city council board.
 So I ask everyone who reads this to call Moreno Valley Unified School District at 951-571-7500 or visit the MVUSD.net website and email the district and complain to them and ask them "why is the council violating our citizens right to speak and why is the district funds for special education not being used in special education?
If everyone got involved and let the district know that the community is watching them, we as parents will be taken seriously and action will follow with positive results.

Friday, November 2, 2012

Waiting.....

Mr. Hansen is being investigated by Human Resources so in the mean time I am not allowed in the class room till then, so I'm waiting...for what...I don't know. Results...I doubt it but I would like to see what they have found and if they think that Mr. Hansen didn't violate the FAPE rule, their full of it and only covering their butts just in case I decide to seek legal action. What a waste of time, but this is the procedure and steps that need to be taken. It really upsets me because sitting in his classroom for 2 hours and watching this teacher roam around as if he had nothing important to do, to put kids in front of a computer, 3 at a time, on a food game that speaks the item is just putting them aside so he don't have to teach them anything. To ignore a kid at a desk while he chews the heck out of his toy for 5 hours during circle time and the rest of the day is sad and disappointing. To see another kid be put in front of a device meant for blind children and she can see, just baffles me. To see one kid be paid attention to more then the other 11 kids doesn't make sense and to tell me that this kid can speak 50 words, yet I haven't heard one word come out of him. To question an IEP and ask why he has to do the PEC system 20x for my son to learn how to communicate...and still doesn't do it, why is he still here? To see one kid who used to talk and walk independently before he came to his classroom and now says no words and needs assistance to walk?
The system is broken and no one cares in the Special Education Department at Moreno Valley because if they even cared half of what I care I wouldn't be doing what I'm doing. My son matters to me and his education is important and if you can't educate then don't teach if you can't deal with parents like me then retire. It's unfortunate that this "one" teacher can hurt all other teacher's who do care and love these kids, it's unfortunate that this "one" teacher is only in special education for the money. Makes you wonder why some parents choose to take their kids to Charter Schools or a different district; why fight with us, why spend more tax money on your lawsuits form parents like me? If they just toke the time to really listen to the parent's that are honest and just want what's best for their children and put us first we could avoid all this, but they have forgotten how to be a good person;  politics, money, rules and regulations, or just plain ignorance has over come their judgment. So I'm waiting....for what...who knows...a miracle...an epiphany....maybe just closure.